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Getting an autism diagnosis in Union County without a year's wait

Union County, NJ: faster autism diagnosis via PerformCare, Early Intervention, pediatrician referrals, school evaluations, local ABA providers.

Published · Union County, New Jersey

A therapist and a young child working with picture cards at a low table

Start with the right question

If you are trying to get your child evaluated for autism in Union County, the first thing to know is that a school evaluation and a medical diagnosis are not the same. A school district's Child Study Team can decide if your child needs special education services, but that decision does not give you a prescription for applied behavior analysis (ABA). For ABA, you need a medical diagnosis from a qualified clinician, usually a developmental pediatrician, a pediatric neurologist, or a licensed psychologist.

You can pursue both at the same time. You do not need to wait for the school district before you seek a medical diagnosis.

Use New Jersey's early intervention system if your child is under 3

If your child is younger than 3, the New Jersey Early Intervention System is the place to start. You can refer your own child. Ask for a developmental evaluation. Early intervention programs in New Jersey evaluate delays and can help connect you to a diagnostic specialist. The evaluation is separate from an ABA provider. Early intervention services are not the same as ABA therapy, but they start the clock and create a record of delays.

For ages 3 through 21, call PerformCare

PerformCare is the single access point for the Children's System of Care from age 3. Call PerformCare and ask for an intake for a child with suspected autism. Explain that you are looking for a diagnostic evaluation. The intake worker will ask about your child's development, behavior, and any reports from teachers or doctors. PerformCare can connect you to services and supports in the Children's System of Care. This is a public gateway, not a private clinic. You do not need a lawyer or an advocate to call.

If your child is already in therapy or has a pediatrician, ask that professional to make a referral to PerformCare as well. A referral can speed things along, but it is not required for you to call yourself.

Ask your pediatrician for a diagnostic referral and a cancellation list

Your child's regular pediatrician is the most direct route to a medical diagnosis. Ask for a referral to a developmental-behavioral pediatrician or a pediatric neurologist. Wait times for these specialists are often long, but they vary. Ask the specialist's office if they keep a cancellation list. Ask if they accept self-referrals or require a referral from your pediatrician. Ask if the diagnostic evaluation can be done through telehealth for the first visit. In New Jersey, many diagnostic practices offer a hybrid model.

You can also ask a licensed clinical psychologist who works with children. In New Jersey, a licensed clinical psychologist can diagnose autism. A diagnostic evaluation may include the ADOS-2, a structured observation tool. Ask the psychologist if they are familiar with the ADOS-2 and with writing ABA treatment plans.

Use Union County's ABA provider registry to find nearby clinics

Union County has 52 ABA providers registered on the federal NPPES registry. That registry is public. You can search it yourself. Seventeen of the county's 21 municipalities have an ABA provider in the town itself. Every town has a provider within 7 miles. This matters because you do not need to choose a provider that is hours away. You can look near your town and ask about waitlists.

ABA providers do not diagnose. But they can be a source of local knowledge. Once you have a diagnosis, ask the provider if they have a relationship with the diagnosing clinician. Ask if they can help you submit the prescription to your insurance plan. Providers cannot force an insurer to pay, but they can tell you what they need in the diagnostic report.

If you use NJ FamilyCare, work with your managed care plan

NJ FamilyCare is the state Medicaid and CHIP program. Most families in Union County who qualify use a managed care plan. The managed care plans in New Jersey are Horizon NJ Health, Wellpoint, Aetna Better Health of NJ, and UnitedHealthcare Community Plan. Once your child has a diagnosis, call your plan and ask for the behavioral health department. Ask for a care manager. Ask exactly what documentation the plan needs to authorize ABA. Ask whether you need a prior authorization for each treatment year or for each treatment hour. Ask if the plan covers parent training and caregiver guidance.

If your child is over 21, the Division of Developmental Disabilities is the state agency for adult services. That is a different system, and it does not use PerformCare. Plan for that transition before age 21.

Put the school district evaluation in parallel

If your child is in a Union County public school district, you have the right to request a Child Study Team evaluation. The school districts include Berkeley Heights, Clark, Cranford, Elizabeth, Garwood Boro, Hillside, Kenilworth, Linden, Mountainside, and Plainfield. Write to the school principal or the district's director of special education. In your letter, say you are requesting an evaluation to determine eligibility for special education services under the Individuals with Disabilities Education Act. Sign and date it. Keep a copy. The district must respond within a set timeline under state and federal law. That evaluation is for school supports, not for ABA medical necessity. But it is useful and it runs on its own clock.

You can do the school evaluation and the medical diagnosis at the same time. You do not need to wait for one to finish before starting the other.

What to bring to the diagnostic appointment

  • Your child's birth date and basic information.
  • Any reports from early intervention, school, or therapists.
  • A written list of the behaviors that made you seek an evaluation.
  • A list of questions for the clinician.
  • Your insurance card and NJ FamilyCare information if you have it.

Ask the clinician, before you leave, whether the report will include a medical diagnosis and a prescription for ABA. Ask how long the report will take to be sent to you and to your insurance. Ask if the clinician will write a letter of medical necessity. That letter is the document that tells an insurer why ABA is needed.

Be honest about the uncertainty

Diagnostic wait times in New Jersey are not fixed. They change with the season, with staffing, and with insurance. No one can promise you a specific number of weeks. What you can control is starting several paths at once: the early intervention or PerformCare intake, the pediatrician referral, the school district request, and the search for a nearby ABA provider. Union County's density of ABA providers means that once you have the diagnosis, you are not stranded. The bottleneck is the diagnostic appointment, so ask about cancellations and telehealth from the very first phone call.

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