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Why Union County families wait months for ABA, and what actually moves them up

Concrete steps Union County, NJ families can take to shorten ABA therapy wait times using local providers, insurance, and school districts.

Published · Union County, New Jersey

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Who can provide ABA in Union County right now

The federal NPPES registry lists 52 ABA providers registered in Union County. That number includes individual practitioners and group practices. Every one of the county's 21 municipalities has at least one provider within 7 miles. Seventeen towns have a provider inside the town itself. The towns with the most registered providers are Union (9), Cranford (7), Clark (6), and Westfield (6). Elizabeth and Linden each have 4. If you live in one of these towns, you may have a slightly higher chance of finding an available provider nearby. But having a provider nearby does not guarantee an open slot. Many are full or have months long waiting lists.

Why the wait happens

Even with 52 providers in the county, the wait for Applied Behavior Analysis therapy is long. The main reasons are a shortage of Board Certified Behavior Analysts and a high number of families seeking services. Insurance companies also require prior authorization, which can take weeks. Some providers only accept certain plans. You might find a provider close to you but they do not take your insurance. Or they have a wait for a BCBA to do an initial assessment. No one can tell you exactly how many weeks or months you will wait because it depends on your child's age, your insurance, and the specific provider's caseload.

The step that actually moves you up

1. Get on multiple waitlists at once

Do not call only one provider. Call every provider within a reasonable drive. Ask each one: are you accepting new patients? What is your current wait time for an intake assessment? Do you accept my insurance? Write down the answers. If a provider says they have no openings, ask if they keep a waitlist and how they manage it. Some providers prioritize children who are already in the system or who have a referral from a specific source.

2. Use your child's school district

If your child is age 3 through 21 and has an Individualized Education Program (IEP), the school district may be able to help. School districts in Union County, such as Berkeley Heights, Clark, Cranford, Elizabeth, Garwood, Hillside, Kenilworth, Linden, Mountainside, and Plainfield, are required to provide a free appropriate public education. ABA therapy can be included in an IEP if the IEP team determines it is needed for the child to make educational progress. Request an IEP meeting and ask for ABA as a related service. This does not guarantee immediate therapy, but it forces the district to document why it is or is not provided. Some districts contract with local ABA providers, which can shorten the wait.

3. Check your insurance plan's network

For children under 21, New Jersey's Medicaid program is called NJ FamilyCare. It has four managed care plans: Horizon NJ Health, Wellpoint, Aetna Better Health of NJ, and UnitedHealthcare Community Plan. Each plan has its own network of ABA providers. Call your plan's member services number and ask for a list of in network ABA providers in Union County. Ask how many are accepting new patients right now. If you have private insurance, do the same. Sometimes a provider is in network for one plan but not another. You may need to switch plans during the next open enrollment if you have NJ FamilyCare.

4. Contact PerformCare if your child is 3 or older

PerformCare is the single access point for New Jersey's Children's System of Care for children age 3 to 21. They coordinate mental health and behavioral health services, including ABA. Call PerformCare and ask about ABA services. They may have a list of providers or be able to help with referrals. For a child under 3, contact the New Jersey Early Intervention System. Early Intervention can provide ABA as part of a family's service plan. Both systems have common but variable wait times. Be persistent.

5. Ask the provider what documents they need

Before you call, have the following ready: a diagnostic letter or autism diagnosis from a doctor, your insurance card, and your child's date of birth. Ask the provider what they need to start the process. Some require a referral from a pediatrician. Others accept a diagnosis from a psychologist or developmental pediatrician. If you do not have a diagnosis yet, that is your first step. A pediatrician can make a referral for an evaluation. The wait for an autism evaluation in New Jersey can be long, but some providers offer evaluations in a few months. Ask your pediatrician for a referral to a developmental pediatrician or a psychologist who specializes in autism.

What to do after age 21

Once your child turns 21, the Children's System of Care no longer applies. The Division of Developmental Disabilities (DDD) becomes the main point of contact. DDD has its own eligibility process and waitlist for services. It is important to apply for DDD services before your child turns 18 to ensure a smoother transition. Ask your current provider or school district about transitional planning.

A realistic expectation

Even if you do everything on this list, you may still wait months. The system is stretched. But you can reduce the wait by calling every provider, using your school district, and staying on top of your insurance plan. Do not assume that one call is enough. Follow up every two weeks. Some families find a slot when a provider has a cancellation. Others find a provider in a neighboring county. The key is to keep moving forward, one call at a time.

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